DUCHENNE AND BECKER ADULT CARE PRE CONFERENCE

June 28, 2023
  • Advancements in the care and research of Duchenne and Becker muscular dystrophy have resulted in individuals living with these diagnoses living longer lives. Pediatric institutions across the country have built comprehensive and coordinated neuromuscular programs to care for these patients. However, the adult care of people living with Duchenne and Becker muscular dystrophy is often fragmented and difficult to find and access. PPMD is hosting a meeting alongside key healthcare professionals to dive into transition of care through adulthood and elements to make caring for this cohort of patients optimal through the lifespan.

Target Audience

  • Allied Health Professionals
  • Nurses
  • Nurse Practitioners
  • Physicians

Learning Objectives

  • Discussing the patient experiences of adults living with Duchenne and Becker muscular dystrophy to learn about their journey accessing care and resources
  • Discuss elements of transition of care planning for patients living with Duchenne and Becker muscular dystroph
  • Discussing available supportive resources such as occupational therapy, federal and state benefits, financial planning, and other necessary assistance that may be available to adult patients with Duchenne and Becker muscular dystrophy.
  • Discussing the nuances of transfer and transition of care for patients living with Duchenne and Becker muscular dystrophy.
  • Discussing the importance and mechanisms of collaboration among subspecialists who care for adult patients living with Duchenne and Becker muscular dystrophy.
  • Discussing the physical, psychological, emotional, social, and spiritual components of care that can be provided by palliative care services to adult patients living with Duchenne and Becker muscular dystrophy.
  • Discussing coping tools and resources to overcome compassion fatigue and burnout in healthcare professionals who care for patients living with Duchenne and Becker muscular dystrophy.
  • Discussing a case study of a successful transition program for patients living with Duchenne and Becker muscular dystrophy.
  • Discuss the elements of an ideal model of a neuromuscular care center for adult patients living with Duchenne and Becker muscular dystrophy.
Course summary
Available credit: 
  • 5.00 AMA PRA Category 1 Credit(s)™
  • 5.00 ANCC
  • 5.00 Attendance
  • 5.00 IACET CEU
Registration Opens: 
06/28/2023
Registration Expires: 
06/27/2025
Activity Starts: 
06/28/2023 - 12:30pm EDT
Activity Ends: 
06/28/2023 - 6:00pm EDT
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Durham, NC 27705
United States
  • Ryan Russell

             Speaker

  • Mallory Dupree

            Speaker

  • Christina Trout, RN, MSN

           Speaker

  • Hillary Zebberman, MSW, LCSW

            Speaker

  • Mena Scavina, DO

            Moderator, Speaker

  • Amy Renwick, MD

            Speaker

  • Chet Villa, MD 

            Speaker

  • Richard Shell, MD

            Speaker

  • Sue Apkon, MD

           Speaker

  • Kent Williams, MD

           Speaker

  • Mark Meyer, MD

           Speaker

  • Moshe Cohn, MD

          Speaker

  • Cuixia Tian, MD

           Speaker

  • Hani Kushlaf, MD

           Speaker

  • Pradeep Mammen

           Speaker

  • AMA PRA Category 1 Credit(s)
  • ANCC
  • IACET CEU
  • JA Credit - AH

Available Credit

  • 5.00 AMA PRA Category 1 Credit(s)™
  • 5.00 ANCC
  • 5.00 Attendance
  • 5.00 IACET CEU
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